As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. Wineland enjoyed performing on stage from a young age. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. She took great care to decorate her hospital room so it felt and looked like home. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. 2023 Cable News Network. Shed also get a butt. Cystic fibrosis is a genetic condition with no known cure. However, her illness forced her to leave the platform in 2017. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. She was 21. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. In one of the last videos Claire posted, she went where she hadnt before. She founded her own company at 13. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. She expected to die young. Sympathy . On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Submit an Obituary. "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland? "Claire's gift is huge, I want your family to know that your daughter is a hero. Yeager posted a video of herself doing a happy dance with friends in the waiting room.But not long after the successful surgery, hope turned to fear. She knew that the call could come at any minute, and on August 26, it did. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. Shed worked hard to get there, was focused on her self-care and getting stronger. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. Her foundation said she had died peacefully, surrounded by family. Updated Living a life we can be proud of is something we can control." - Claire Wineland. We invite you to share condolences for Claire Wineland . Really. Claire, who understood the importance of organ donation, was a donor herself. Claire Wineland died at age 21, too young. Claire was an activist, author, TEDx Speaker, social media. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. Read full obituary. Did you encounter any technical issues? Required fields are marked *. Its not about how you feel second to second, she said. She had a popular YouTube channel, gave . Go enjoy it, cause there are people fighting like hell for it.. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. "See y'all on [the] other side. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Im grateful for the chance to keep being a person. Despite suffering from a critical illness, she maintained a positive attitude to life. But Claire took on the evaluation process to get on the list with laser focus. The Plain Dealer. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The Foundation has funded more than 26 families till now. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. It's not about how you feel second to second," she said. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. The gift of life: Recipient of an organ donation herself, her organs were donated after her death. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. None of it spooked me, Claire said afterward. I want to see what happens in life. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. I'm not an innocent and I'm not a child," she wrote in March. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. Search by Name. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. She has gone on to become an advocate for others suffering from the disease she has had since birth. I'm willing to deal with anything.". Im grateful for my own head and for all the weird things in it. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. She listened to the risks and the long list of side effects and emerged unfazed. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. The years of telling myself I can do it on my own are over.. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Some people worried that shed waited too long and wouldnt be given the chance at continued life. However, her illness forced her to leave the platform in 2017. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. At the time of birth, she had the life expectancy of only 5 years old. appreciated. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. Her survival inspired her to start- Claires Place Foundation, a, She was proficient in American sign language.. CNN Sans & 2016 Cable News Network. She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. Eldridge R. Johnson Cause of Death, Age of Death, and Other Facts! Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. A double-lung transplant, when successful, can add years to a patients life. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Senior producer, Legacy.com. "I had to be honest," she once explained. Dedicated daily to memorializing notable personalities. I have found a new hero, her name is Claire, I am a US Marine and a Retired Police Officer, and just recently viewed on of Claires Videos on U-Tube, I became instantly in love with her, as Im sure many have. A supportive space for people & families affected by Cystic Fibrosis. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. She performed with Philips Breathless Choir, as a solo singer. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. Claire and her mother beamed in a photo posted on social media after they learned her transplant was a go. Im grateful for all the people who donated to help me get through transplant. She has a younger sister, Elanore Nordquist. Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. I didnt expect to have a chance. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. She wasnt done contributing. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Submit an Obituary. The Times-Picayune. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. 2:33 PM EDT, Tue September 4, 2018. "[12] She died on September 2, 2018, at UC San Diego Thornton Pavilion. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. She joked that the squats she was doing, upon doctors orders, would help get her more than lungs. [3] She joined the Philips "Breathless Choir" as a soloist. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live -- and give -- more. She was an avid dog lover and had a dog named- Daisy.. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. [7], Wineland was chosen to be the keynote speaker at AARC Congress, the 63rd International Respiratory Convention and Exhibition. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. "Life isn't just about being happy. Obituaries Section. Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. Wineland miraculously came back to life. I didn't expect to have a chance. Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. Snap Greene is the alter-ego of 13 year old Claire Wineland. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. What happened in the Ukraine helicopter crash? She had a popular YouTube channel, gave Wineland appeared in an episode of the American teen medical comedy-drama TV series, Red Band Society. She also made an appearance in the documentary series, My Last Days, which was created by actor Justin Baldoni. I am 17 years old and a senior in high school. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. Claires Place Foundation is planning to continue extending support to patients. Despite emergency surgeries, and what her mother described as "Herculean efforts" to try to save her, the daughter she knew was gone. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. What happened in the Ukraine helicopter crash? There is no passionate rant to be had here I am just happy and thought I would let you all know. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. She has a younger sister named Ellie Wineland. Founded a charity to help others suffering from the disease. Save my name, email, and website in this browser for the next time I comment. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. Claire Wineland's death was caused by stroke. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. It hurts everything inside of me to make this video, she said into the camera. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. See yall on [the] other side.. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Today, Claires Place Foundation continues to carry on Claires legacy. According to her, pitying ill people was disempowering them. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. On Monday afternoon, her mother received word that Claire had already made a difference. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. She passed away peacefully, with her parents by her side. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. La Jolla, California CNN . Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. , TEDx speaker, social media after they learned her transplant surgeries can do it on my own and. A person rant to be honest, '' she said Death Date, and website in this for! Passed away peacefully, with her social media Sanjay Gupta every Tuesday from the disease guys, depression drugs family. 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