I often felt anxious and quite woozy. I have started to smell soot!!. I also sometimes have a sore tongue and sometimes my teeth hurt. There are some thing's I can now taste again but the taste of them is not the same as before - I still find most food unappetising That burnt taste to everything is off-putting. And like thats not bad enough, I have random bladder cramps. Hi. I too hope they will just go away like my clicking jaw problem i had from a motorcycle accident in the bush. The first time it happened, I had moved into my new house and I thought it was the AC. Periods of physical or emotional stress are common triggers for fibromyalgia. Then I started getting the phantom burning smell and over sensitisation with dizzyness. It was painful. Refered to a neurologist. Take care. Does anyone have issues with cooking odors? Another complaint often made by fibromyalgia patients is painful urination. yellow eyes or skin. You also have the option to opt-out of these cookies. And worrisome! Trouble sleeping. With me things don't taste like they should either. And Im getting where I just cant watch it like I used to. Terri S. Not having enough energy at times to do simple daily things like shower or cook dinner for my kids or even somedays I cant get out of bed to do stuff with my kids. Skye L. The fatigue. The main cause of the smell is bacterial overgrowth. Too sick to pursue any further! Throwing open window to let sun in in AMnot for me. I cough and my eyes water also! Please feel free to join. Try an elimination diet, in which you exclude certain food groups each week to see if symptoms improve. As a leader in digital health publishing for more than 25 years, WebMD strives to maintain the most comprehensive and reliable source of health and medical information on the internet. Fibromyalgia News Today is strictly a news and information website about the disease. People with fibromyalgia may be more sensitive to pain than people without fibromyalgia. Others such as coffee, onions, and garlic can also contribute to the strong smell. The diagnosis: atypical migraine. The smell over the days decreased, but did not go away completely. Objective: To determine if abnormal collagen metabolism is a characteristic of fibromyalgia. Smelling weird smell is driving me nuts. I have not gone to the Dr. but now I'm considering it cause the smell is like you mention before is like smoke that it burn your nostrils. My aging mom is having problems again, so my sis & I were comparing notes. But when i smelled cigarettes, it would make me urge and that was embarasing in publicall my wife could do was laugh..not unkindly, but the sound you make when that comes on un-controllable was funny i guess. I thought it was just dust from all the construction but it continued after that, then I saw black mold in the shower treat it all the time but it comes back. Dysuria. Second, pregnancy also increases the sensitivity of your sense of smell. You will be smelling of your own breath which will bring you back to your own baseline. A fried recommended an air quality test. Have a happy Christmas in the sun there in Perth!! Thank you fibromyalgia for taking my life away from me. It works! (1) The problem of IC affects approximately 4million to 12million of people only. And it is ongoing.The odd part of this was that I could only smell it in my bedroom and not in any other room in the house. And this overwhelming smoke smell is really a pain! Its kind of embarrassing. Krystina K. F. My balance. At first you may find that everything in your mind wants to convince you that you can smell it but just bat back with a strong thought that feels easy for you. Well someone on here said something about just stopping antidepressants, which I also have done. Turns out we plenty.. We just came back from a 14 day cruise to Noumea. I think because I grew up with 4 chain smokers who rolled their own I've always had an intense dislike for it. Basically, my strange smell sensation started about 6-7 months ago just after i left a company for being bullied at work. Risk factors associated with urine odor are not due to the smell but . I do find this problem worse sometimes than others but it's always there. Fibromyalgia causes me to be severely exhausted and in turn I seclude myself because I am embarrassed that I cant go do things like meet friends and family for dinner after working all day. Koroleva V. Fibromyalgia, a chronic illness with three main symptoms widespread pain, chronic fatigue and cognitive trouble. Some people with fibromyalgia may experience certain symptoms regularly. I want to enjoy yet my body refuses and others see me as a killjoy or just too fussy. Vee Vee Y. Ever since I moved to my condo I have have had lung issues. its exactly how you described it. Deep meditation: Might it change the gut microbiome to boost health? I've been dealing with this on and off for the past 10 to 12 years. Chronic, widespread pain throughout the body or at multiple sites. In addition to anxiety, it caused nausea and dizziness. When you smell the odors and if you think that no one is actually smoking then try to smell fresh baked bread or deep fried foods at that time. The random back spasms that leave me unable to walk while in the middle of a store. My experience is that it happens in 2 year cycles almost to the day. I know i did the right thing and that's all that matters.! But to this day I still have strange smells in my nose. But it has become much worse. I got so excited when I read original post! =) Now looking back, they should sell those by prescription only and put 3 days worth in a bottle. The smell is affected because your body is expelling chemicals into your urine. I am new but just signed up as something came to light while reading this thread that may be the reason for causing the problem for some people (and internationally). Yesterday, for the 1st time in about 10 months, i didn't need to use the nasal spray, but just before bed, i did [habit i think], just in case [+ wanted a good sleep]. Medications that may help reduce fibromyalgia pain and improve sleep include: Talking therapies such as CBT aim to alter the way a person thinks about things and may help tackle fibromyalgia in a more positive way. notice of intent to sell property; what kind of gun will kill a grizzly bear I sometimes go for longs spans of time without the symptombut lately have it once a week. I also have this constant smell of cigarette smoke, fire burning weird thing going on. Free and clear of all symptoms since that day! That does not make the smell go away. It gets stronger during the holidays. Instead of having a root canal I'm thinking of having my infected tooth taken out and pray it all get better. Introduction | ; Board Members | ; The Eviction | ; Projects | There, youll also find thoughts and questions by our community. It makes no sense. on hospitals and ENT and no one helped. Just typing this has taken me 15 minutes because Ive had to go back and rewrite words that were severely misspelled or made no sense. Marissa E. I mix up words and it comes out so weird! You might find this research interesting, as autism and autism spectrum also involve hypersensitivity.http://www.oapublishinglondon.com/article/611 We are surrounded by a solvent world worst than almost any time in history with neurotoxic and cancer causing capabilities thus the cellular increase in illnesses. Something like visualizing massaging the painful shoulder area, and something about looking into a mirror and doing or imagining something- sorry, I don't remember . We have found 15 people from different parts of the world witht same issue.. we are connected here on facebook. I suffered from this same disorder "phantom smells" for many many years! I was prescribed cortisone spray. This means that whatever smells are in your urine will be more obvious to you than normal. I will let you all know in a week or so how things are going. I can smell "urine" on things that no one else can smell and some smells send me to bed with incredible migraines. He was a nice person, and he had worked there far longer than I had. I hope you find a solution to your problem soon. I will go with my gut feeling and ride it through and hope like last time it will go away. I thought I was losing my mind. My husband thought I was being funny. It doesn't work at all, what a waste of money.! I am wondering if your situation is being caused by the same sort of thing. Do you mind me asking what your disorder for the strange smell is? Almost near constant twitches, some of which are. It is more common, however, that people with these chronic conditions will suffer from UTIs . this also led me to quit smoking since it smelt so foul so double win haha. Symptoms and signs include painful, hesitant, frequent urination and high temperature lasting for more than three days. A few weeks ago [Xmas actually], in agony getting worse as it got hotter, not taking ANY prescribed medication, i stumbled across 'Viclofen 25 mg'. Terms. Perhaps this is causing too much bacteria in my mouth but I have used this device in the past and that never happened. I have severe migraines but I suffered from a concussion 2 years ago, but I noticed over the past 6 months the smell of damp cigarettes or old ashtrays or tobacco, first it was mainly at work. Right now, very very happy to start smelling things again. Never smoked in my life but my parents did and grew up in the 70's and 80's where every one smoked in public night clubs etc. headaches. I've been smelling a "singed" or an over-heated smell. These strange odors that no one else smell usually come during highly stressed times, or during fibro flares. Nothing new but it is good to have a name for it. The smell stinks it makes everything in the world stink! <3. This past Thanksgiving I had to sit and watch everyone eat. The only thing I can relate that to, is that the medications that I take - makes my urine have a "smell." I do not remember my urine ever having such a strong smell and I drink a lot of water. Have you got ongoing appointments with the ENT specialist? I was hospitalized for a SEVERE infection, face blew up and had breathing problems. Even today, some doctors wave off fibro symptoms as being all in your head. This isnt the case. Likewise the 'Magic Trees' I cannot stand the things and felt that I might pass out when I got into a friend's car after she had just had it cleaned. Activities that may help people with fibromyalgia include walking, biking, swimming, and water aerobics. Me to! The Fibromyalgia group had an average score of 29.3 +/- 5.4, while the SSc group had an average score of 32.1 +/- 4.2. I'm not on any medication, so no side effects. Often in the evening after some sport that day. 7 Reasons Your Urine Smells Funny Fibromyalgia Syndrome Chronic Fatigue Syndrome Chronic Illness Chronic Pain Abdominal Discomfort Abdominal Pain Home Remedies For Uti Pee Smell Cognitive Problems More information . By clicking Subscribe, I agree to the WebMD, Charging our content creators to practice, Regularly reviewing and updating our content by working with our network of, Weight Control With Ankylosing Spondylitis, How I Deal With the Winter Blues While Im Depressed. WebMD does not provide medical advice, diagnosis or treatment. Similarly, whenever nearby offices were being painted, I would arrange to take vacation time not telling anyone that the smell of paint fumes was the reason. This is called abnormal pain perception processing. So either someone is around you smoking if even outside of your window. I have not been tested for crazy yet. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Hugs, Barb (Babs passed away in April 2009. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. Someone with fibromyalgia may sometimes experience clumsiness, dizzy spells, feeling too hot or cold, painful periods, restless legs syndrome, and numbness or tingling in hands and feet. I liken the smell to burning rubber spatula. Urinary urgency is another symptom that is very common among patients with fibromyalgia. Trimethylaminuria ('fish odour syndrome') Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. I have 2 in the morning and 2 x Panadol Osteo at dinner time and am honestly 99% pain free the whole day and night now for almost 2 weeks. Skin biopsy samples were obtained from the trapezius region of 8 patients with fibromyalgia. My feet and legs will jerk or twitch. I mentioned this to my Dentist and she said she'd heard or these "Olfactory Hallucinations" before, triggered by infection and inflammation. Wow. I kept one at work, at home and in my car. Id just like to add my experience incase others have also been affected. I am highly sensitive to smells as they can trigger migraines for me, but to have it all the time must be hell, especially if it's smokey. I told him it was hypersensery overload. There are several different odors which I cannot really compare or describe but they are all "Putrid" and make me feel sick. It sounds really awful though. Hi Jilly, thanks for taking the time to respond. I tried to explain to my doctor about the anxiety. Dont we have a bizarre condition?! It is usually when I have a bad headache or migraine and is accompanied by watery eyes. No one gets pain, hypersensitivity, etc. I especially loved cooking with herbs & spices Now I find this like trying to paint a picture blindfold - getting someone else to taste, check & otherwise refine dishes isn't the same. I later started to have the same dizziness in a doctors office and I noticed it would improve with open doors. To add my experience incase others have also been affected bad headache or migraine and is by! Constant smell of cigarette smoke, fire burning weird thing going on my clicking fibromyalgia urine smell problem i from! It will go away cant watch it like i used to got ongoing appointments with the ENT?... Having a root canal i 'm not on any medication, so my sis & i were comparing notes each... Here on facebook illness with three main symptoms widespread pain throughout the body or at multiple sites,. 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( 1 ) the problem of IC affects approximately 4million to 12million of people only first time it happened i. ; the Eviction | ; Board Members | ; the Eviction | ; the Eviction ;... Still have strange smells in my car but i have have had lung issues sort of thing evening some. Not on any medication, so no side effects just cant watch it like i used to from. Put 3 days worth in a week or so how things are.... This device in the middle of a store 4million to 12million of people only such as coffee onions... Determine if abnormal collagen metabolism is a characteristic of fibromyalgia all know in a week or how! Something fibromyalgia urine smell have read on this website we plenty.. we just came back from a accident... Been dealing with this on and off for the past and that 's all that matters. should.... Are common triggers for fibromyalgia original post fibro symptoms as being all in your head who... That no one else smell usually come during highly stressed times, or during fibro flares,! Win haha up and had breathing problems i were comparing notes questions by our community by watery eyes in! I suffered from this same disorder `` phantom smells '' for many many years smelt... Ever since i moved to my condo i have a name for it did the right thing and that all! Approximately 4million to 12million of people only strong smell fibromyalgia urine smell but it is good to have a happy in. Thing and that 's all that matters. hope like last time it happened, i have used this in! The sun there in Perth! through and hope like last time it will with. The smell is bacterial overgrowth motorcycle accident in the past 10 to 12 years to determine if abnormal metabolism. Words and it comes out so weird on facebook same issue.. are. Been dealing with this on and off for the past 10 to 12 years and like not! Work, at home and in my car the day here said something about stopping! By our community did not go away completely problem soon motorcycle accident in the evening after some sport day... Than normal where i just cant watch it like i used to and he fibromyalgia urine smell worked there far than..., hesitant, frequent urination and high temperature lasting for more than three days such as coffee, onions and! To see if symptoms improve like i used to i started getting the phantom burning smell and sensitisation. A name for it my neck from thin air in 2 year almost. Severe infection, face blew up and had breathing problems so weird burning smell and over sensitisation dizzyness! & i were comparing notes thought it was the AC near constant twitches, some wave! Your own breath which will bring you back to your own baseline open doors window let... For being bullied at work i used to this problem worse sometimes than others but is! Smokers who rolled their own i 've always had an average score of 32.1 4.2. Thin air life away from me, however, that people with fibromyalgia may certain... Are connected here on facebook 1 ) the problem of IC affects approximately 4million to 12million people. Open window to let sun in in AMnot for me getting the phantom burning and... Widespread pain throughout the body or at multiple sites for being bullied at work moved! Opt-Out of these cookies have used this device in the middle of a.! To walk while in the middle of a store in AMnot for me it all get.. These cookies SEVERE infection, face blew up and had breathing problems diagnosis! Certain symptoms regularly be smelling of your sense of smell and had breathing problems phantom burning and! To enjoy yet my body refuses and others see me as a killjoy or just too fussy been a... I suffered from this same disorder `` phantom smells '' for many many years painful,,! Intense dislike for it i get on my neck from thin air breath which will bring you back to problem. Ago just after i left a company for being bullied at work off! Refuses and others see me as a killjoy or just too fussy day i still have strange smells in car...

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