Here are some of the key steps your healthcare team will take to prepare you for treatment. Risk factors for radiation necrosis in patients undergoing cranial stereotactic radiosurgery. The robotic arm moves around the patients head, allowing the radiation to be targeted more precisely. You can have these one to three days after gamma knife treatment. Connect with thousands of patients and caregivers for support and answers. At Bupa we produce a wealth of free health information for you and your family. Maybe it is as easy as some oxygen. J Neurosurg. Because the tumor was in the parietal lobe, my left motor functions ran right thru it and I had some left side motor issues. Photos are only for illustrative purposes and do not reflect every presentation of a condition. Everything I've ever read says Gamma Knife on a cerebellum tumor should only be done when the tumor is under 2cm, there isn't an associated cyst and there aren't any symptoms yet. An official website of the United States government. World Neurosurg X. They will be close by if you need them. However, that information will still be included in details such as numbers of replies. - numbing was gone by next day. Delayed Side Effects Of Gamma Knife Treatment. Its something youre usually born with and is often discovered during young adulthood. Cancer that has spread (metastasized) to the brain from another part of the body, A slow-growing tumor of the nerve that connects the ear to the brain (, Other growths in the brain or spinal cord (chordoma, meningioma). Gamma Knife radiosurgery can be used to treat the following types of brain tumors or upper spine tumors: Gamma Knife is also used to treat other problems of the brain: Radiosurgery (or any type of treatment), may damage tissue around the area being treated. Steroids helped to stay functional but developed all kind of side effects.. Tapered off slowly trying to stop but now feel really sick.. I'm not an authority but did have 6 brain mets treated on 4/11. It may also worsen the symptoms that were present before treatment. For more information about the Gamma Knife Program at AdventHealth, call our Gamma Knife care coordinator, Denal Wilson, at 407-303-7944. im scared and alone in this battle and my husband wont talk about it. For Medical Professionals. Careers. You might have the treatment all in one go or it may be broken up into smaller parts. Soft-tissue radionecrosis of the brain generally occurs in the area of the brain where the tumor was radiated. If you develop new conditions in the future, you can rest assured that our health insurance comes with full cancer cover as standard. They are in KY. Might even be in the phonebook, or have a website. So she preferred to look at the headaches she had in a positive light- as a good sign the tumor was dying. Thanks, everyone, for all the help f, Mom is receiving Gamma Knife radiation to a brain met. A retrospective study was performed to analyze some parameters in a consecutive series of 35 Gamma Knife treatments in 34 patients with benign meningiomas. If so can you tell me what to expect? Medscape. For a small number of people, this can cause swelling. I hope you can brag the same for Don next week. He said gamma knife to get rid of these two spots. No question is too small. Soon after the gamma knife, he got his hand use back. my husband has lung cancer that has mets in his brain. My surgeon has been brilliant and my radiotherapist can only offer that I am unfortunate and that mistakes have not been made - I just had a terrible reaction to the treatment. How scary is it? Radiation necrosis. Has anyone treated with Gamma Knife for brain mets? WebBrain tumor, breast cancer, colon cancer, congenital heart disease, heart arrhythmia. Philadelphia, PA: Elsevier; 2023:chap 293. I suggest you confirm our info direct with your rad onc so there are no surprises. J Neurosurg. My dad has completed 2.5 years since his diagnosis of NSCLC Stage IV. 0808 271 8573 ^, Members URL of this page: //medlineplus.gov/ency/article/007577.htm. My brain tumor was removed in December and in January I had the bed radiated. I can get pretty snippy too. Di Franco R, Borzillo V, Ravo V, Falivene S, Romano FJ, Muto M, Cammarota F, Totaro G, Ametrano G, Rossetti S, Cavaliere C, D' Aniello C, Iovane G, Porricelli MA, Berretta M, Botti G, Starace L, Salvia E, Facchini G, Muto P. Neuroradiol J. Brown PD, Jaeckle K, Ballman KV, et al. WebIdentify possible conditions and treatment related to your symptoms. i am getting very moody to the point im going off on everyone. :). because i look normal (sorry) and can walk and talk im fine. with Don's other radiation, they just gave him bigger doses and let the radiation work on everything in its path. For cancers or growths lower down in the spine or anywhere else in the body, another focused radiosurgery system may be used. These might include: Ask your doctor for more information about your options. www.radiologyinfo.org, reviewed 28 May 2019, Kerschbaumer J, Demetz M, Krigers A, et al. Some doctors recommending WBR but we are worried about the side effects. We do not accept advertising on this page. You may be asked to do this by signing a consent form. my son broke his ankle and had surgery tuesday so i talked to the nurses if there was a good endo or neuro to see and was told no endos but in lex and neurosurgeon was mine. Stereotactic radiotherapy; Stereotactic radiosurgery; SRT; SBRT; Fractionated stereotactic radiotherapy; SRS; Gamma Knife; Gamma Knife radiosurgery; Non-invasive neurosurgery; Epilepsy - Gamma Knife. Gail S. I am trying to get info from anyone who has suffered brain swelling months after having brain radiation. I am from the UK. Brain tumor, breast cancer, colon cancer, congenital heart disease, heart arrhythmia. i havent seen the endo in 2yrs . - ask how long he will be locked into the machine and request meds, as appropriate or desired. This is a reaction to the treatment itself and doesnt mean your tumour has got any worse talk to your doctor if youre worried. DO NOT wear jewelry, makeup, nail polish, or a wig or hairpiece. Others recommend gamma knife to bed of tumor and the two others. Ive been on Tagrisso as my only treatment so far. It would be wrong of me to tell you to wait until next week. The prep work looks pretty frightening. look him up and tell me wht you think university of kentucky hospital my neurosurgeon is byron young and the endo is ralph miller. my neurosurgeon wont take calls . The face mask fits quite tightly. A family member had gamma knife radiation at Mayo for a brain meningioma in August and recently had neuro episodes suspected to be post procedure swelling 5 months post procedure. Highly focused radiation beans using the Gamma Knife system target and destroy an abnormal area. i have always been close to my parents and showed great If this happens, get plenty of rest, eat healthily and ask someone to help you with day-to-day tasks if you need it. I am sorry he has to go through all this but I think it is a good plan. An intravenous (IV) line will be placed into your arm to deliver contrast material, medicines, and fluids. Arrange ahead of time for someone to drive you home, because the medicines you are given can make you drowsy. Sometimes, complications may develop months or years after your treatment. In most cases, gamma knife treatment lasts between 30 minutes and three hours. They are the answer people. You might also call the doctor office and see if they have something to suggest regarding transportation or perhaps a doctor calling on you at your home, since you don't want to drive when it could be potentially life threatening to yourself and others around you for you to do so. These are usually made of a mesh with lots of small holes and help to keep your head still. Cranial nerve injury. Interested in more discussions like this? simple as that. For some people, this can last for days or weeks. If you do lose some hair, it will usually grow back within a few months but it can sometimes grow back thinner or a slightly different colour. If post-treatment swelling and symptoms do occur from the Gamma Knife treatment, these symptoms usually show up approximately six months after treatment rather than immediately after the procedure like with conventional surgery. I had to grow patience with this. A coordinator will follow up to see if Mayo Clinic is right for you. broadly : something that indicates the presence of bodily disorder. When youre ready to go home, make sure someone can take you. If you could only funnel that rage. to get a good endo and get yourself some decent medical care. 2012 Mar;116(3):588-97. doi: 10.3171/2011.11.JNS11530. I had someone tell my loved one that she had necrosis (tissue death) in the tumor, which she said actually began prior to gamma knife! im even starting to have them after i come to after my seizures!! My Mom has a small 2 cm lesion and we're waiting to see if she's approved for the procedure. Macmillan Cancer Support. A retrospective study was conducted on 320 patients (median age 56 years, range 24-87 years) who underwent primary Gamma Knife radiosurgery for asymptomatic Also my left ear is fluttering and roaring. They will give you a schedule on how to wean off. Bloody, black or tarry-colored stools. The pin sites typically heal on their own. But tumor back. when it can't reproduce, it gets confused and dies. Thanks..tying to hold off calling since his gk is Weds..and not sure what to say..I'll just watch him close..The onc did say where the bigger met was might affect his motor skills.. we were blessed to have a radiation onc and his magnificent nurse who did a masterful job of explaining the gamma knife. I am one year post diagnosis for stage 4 nsclc with brain Mets in the meninges and bone. If you You may be given medicine before and after the procedure to lower this risk, but it is still possible. Have you followed up with your endo - you may have lost pituitary function. The brain swel, Hi 2015 Feb;57(2):77-81. doi: 10.3340/jkns.2015.57.2.77. I believe they did see some fluid in the area post gamma knife on at least one of the f/up MRIs. If youre taking any medicines, let your hospital know and bring them with you. my husband took off work to be with our son during surgery and he was told he cant take off for my apt on the 12th. Linking to and Using Content from MedlinePlus, U.S. Department of Health and Human Services. For awhile, there was an increase in headaches, followed by an MRI that showed the tumor dying more. doi: 10.3171/2016.6.GKS161404 thejns.org, Treatment for cancer. His doctor suggested him to take Ta, Hello everyone b9fb7f1a-7573-46df-8b36-1928166827cb-8B26, Learn about symptoms, causes and treatment, Read about the treatment of warts and verrucas, How they work and how much you should take, Reviewed by experts, written in plain English, Over 400 articles, from our health experts, to help you live a longer, healthier, happier life, Information dedicated to knee health including treatment and care, Read about how to look after your mental health and learn about different conditions, Information dedicated to running including training plans, advice and tips, Learn what dementia is, why it happens, and how to get support, How to spot poor workplace mental health and improve wellbeing within your team. Gamma Knife followed by Alectinib (chemo pill), anyone? JAMA. She was in the hospital about a week, then transferred to a rehab facility for therapy for several weeks but is now back home and according to my Dad, just about back to normal for her at age 82. If you have any questions, ask your pharmacist for advice. Wow, lots of variations in experiences here. Medscape. Muscle weakness has been a problem with the steroids. The machine may move your head slightly so that the energy beams are delivered to the exact spots that need treatment. its better than gama. Do y, SO im back .. well we found out she has 5 mets 1 in the cerebellum close to the brain stem.. the dr offered gamma knife or whole brain rad. Don started Dexamethason 4mg 2x a day, so 8mg daily. Ocassionally, there is a stabbing pain in the ear. ive searched and there 100+ miles away. She was treated with WBRT (5 treatments). 2006 Dec;105 Suppl:120-6. doi: 10.3171/sup.2006.105.7.120. This morning he underwent the Gamma Knife procedur, Well today we met with my mom's onc because she started having some "symptoms" last week like leaning to the right, dragging right footthey did a brain MRI and today we learned that although she did have WBR, the larger of the two brain mets was unchanged, the smaller one increased in size a little with increased swelling around it. This is a complex tangle of blood vessels with abnormal connections. Find out more in After Don is weaned off he might "crash" like I did. If you or your child are experiencing any of these symptoms, you should talk to your doctor. If you had a head frame, there may be a little bleeding from where the pins were, so you might need to wear a bandage for a while. That was November 2010. You may be able to do many of your usual activities after 4 to 6 weeks. Get the facts about this disease that affects more than 240,000 men each year. Sheehan JP, Cohen-Inbar O, Ruangkanchanasetr R, Bulent Omay S, Hess J, Chiang V, Iorio-Morin C, Alonso-Basanta M, Mathieu D, Grills IS, Lee JY, Lee CC, Dade Lunsford L. J Neurooncol. my labs were all low and he tells me to lose weight and i would feel better. Can anyone help me with the right questions to ask the neurosurgeon about this or alternative treatment -- side effects, time out, etc. Aside from, Scheduled for Gamma Knife Surgery this coming Tuesday to address metastasized Lung cancer to the back of the eye ( choroid). Radiosurgery technique. My father was diagnosed with NSCLC adenocarcinoma in May. Medicine and ice packs can help with headaches, pain, swelling, and itching. You might have to stop driving if theres a risk of you having a seizure, for example. sharing sensitive information, make sure youre on a federal What did I lose, half my sight, a large portion of my skull, my driving licence, my indendance, my job the list is endless. To use the sharing features on this page, please enable JavaScript. Book a GP appointment, health assessment, sexual health check and more, at a time that suits you. I never had my head drilled for them to affix the frame. i have seen almost every neurosurgeon thats in that hospital, for there oppinion. All Rights Reserved. Gamma knife treatment needs to be carefully planned to make sure the radiation goes to exactly the right place. Prediction of intracranial edema after radiosurgery of meningiomas. In: Flint PW, Francis HW, Haughey BH, et al, eds. I did that with my insurance - most have them - call the toll free # or look thru the website and ask about it. Your doctor might prescribe you a steroid medicine to take after the procedure. I've got some anger issues myself but I've learned to funnel it into a fight for me to get to the bottom of what the heck is going oner well uhm mostly. That is ridiculous that they would trash your notes you bring to help you get the most from you appointment! That should be reported as a written g You usually can self-enroll (I did) and the nurse can be your advocate. What I know is they will give you a steroid to take a couple of days prior and a couple days after. This means the treatment is less likely to damage any healthy tissue around the area of concern. I had gk 4 weeks ago to treat a single met in the medulla.. Not s good place:( Lung cancer survivors support group and discussion community. can my pituitary be fine and i dont need any hormones with my labs being low/normal ? We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. It is suggested that doses of 18 Gy or more should probably be avoided in the Gamma Knife treatment of meningiomas and that the greatest care should be taken in selecting non-skull base tumors for this form of treatment. is among the first to achieve this important distinction for online health information and services. Does your insurance have a nurse network to call? Leaving your company health insurance scheme? Hi, I made 2 surgeries to Pitutary Gland becuase of tumor in 2000 & 2001. But tumor back. So I made Gamma Knife 2 weeks ago. Now I have no headache ur doctor should have reccomended cyberknife. its better than gama Cummings Otolaryngology: Head and Neck Surgery. You might check with your insurance, tell them you are having seizures and ask if they offer any transportation service. During the procedure, the dye is put in through a thin tube in a blood vessel in your groin. Expert reviewer, Josiah Rickman, Senior Gamma Knife Radiographer, Cromwell Hospital Complications were divided into If you have a headache, you can take over-the-counter painkillers, such as paracetamol and ibuprofen. 2016;316(4):401-409. I have just come across this forum and wonder just how many of us are sufferring. I truly think he will be fine. i cant say that out loud it puts to much stress on my family. Disclaimer, National Library of Medicine If she has it, what should she expect? Jpn J Clin Oncol 2018; 48(5):40509. Depending on what condition youre having the gamma knife for, you may need to have a face mask made to wear during treatment. It may also worsen the symptoms that were present before treatment. Oermann EK, Bhandari R, Chen VJ, Lebec G, Gurka M, Lei S, Chen L, Suy S, Azumi N, Berkowitz F, Kalhorn C, McGrail K, Collins BT, Jean WC, Collins SP. More of it showed up in f/up MRIs after gamma knife and it was explained that would happen because the gamma rays killed the DNA of the tumor. The shots do hurt, like any type of shot. Well, after almost a year of trying to manage the edema caused by the gamma knife procedure, and all of the serious side effects from them (dizziness, inability to function on many levels due to edema, predniosne and the effects from the steroids as well), my step-mom finally agreed to have the meningioma removed a few weeks ago at the University of Kentucky (near where she lives) and she is doing very well! We left the hospital at 4:30 that day. He wants me high in the thyroid levels (except TSH), higher in IGF-1, higher on the cortisol end - at least not on the low end (we argue about where ha ha ha). The Gamma Knife radiosurgery system is used to treat either cancers or growths in the head or upper spine area. Notify the operator that you are seeking care for someone who has or may have COVID-19. www.cancerresearchuk.org, last reviewed 24 July 2019, PET scan. i have had 7 seizures in 12 weeks and each 1 is worse. be prepared - my dad was hungry afterwards - be sure and get something real easy to consume as the happy juice makes you kind of uncoordinated. Following my first MRI after the Gamma Knife, the radiation oncologist congratulated me on being stable. my cheat sheet gets trashed everytime. PMC This keeps your head still and in the right place for treatment, but it can feel a bit uncomfortable. Trifiletti DM, Lee CC, Schlesinger DJ, Sheehan JP. April 30.just a bit fearful doing it alone..but Don will whistle..just to let me know..it's OK!! Macmillan Cancer Support. But please call the doctor or his nurse. After the imaging, you will be brought to a room to rest while the doctors and medical physics team prepare the computer plan. The minimum dose to the tumors was never less than 12 Gy. You wont feel anything, and the machine is usually quiet. Ask your doctor for advice and check the website of the Driver and Vehicle Licensing Agency (DVLA) for more information. Radiat Oncol 2018; 13(1):26. doi:10.1186/s13014-018-0969-2 www.ncbi.nlm.nih.gov, Koiso T, Yamamoto M, Kawabe T, et al. Except I began to eat more and more may be 14 light meal a day and I feel I do not need to sleep. Hello! Did you try contacting that medical transportation service I told you about in another thread? Hello All, Has anyone done this at NYU? Either way, you should be able to return to work or your normal routine in another day or so. i have always been close to my parents and showed great respect to the both of them.my temper and fuse is very short as i fussed at my dad ( not like me at all.) I think I have a pituitary tumor. Wed love to hear what you think. J Korean Neurosurg Soc. Here I si, like others, taking Dexamethason - tried to wean off but it is masking so many other symptoms that it has not been possible, Keppra (google Keppra rage - not anice drug) and various other medications. Cancer, congenital heart disease, heart arrhythmia check the website of the brain swel Hi., because the medicines you are having seizures and ask if they offer any transportation service our health insurance with! Means the treatment itself and doesnt mean your tumour has got any worse talk to your symptoms headaches. It gets confused and dies has mets in his brain of this page, please enable JavaScript procedure to this! Lose weight and i dont need any hormones with my labs being low/normal help with,! Since his diagnosis of NSCLC Stage IV with my labs were all low and tells... Weakness has been a problem with the steroids 's other radiation, just! Treatment related to your symptoms in 12 weeks and each 1 is worse do this by signing a consent.... Come to after my seizures! brown PD, Jaeckle K, Ballman KV et... Recommending WBR but we are worried about the side effects arrange ahead of time for someone who suffered! Each 1 is worse advice and check the website of the Driver and Vehicle Licensing Agency ( DVLA for. The point symptoms of brain swelling after gamma knife going off on everyone feel really sick and using Content from MedlinePlus, U.S. of. Me to lose weight and i would feel better weaned off he might `` crash like. Pw, Francis HW, Haughey BH, et al knife on at one... One go or it may also worsen the symptoms that were present before treatment symptoms of brain swelling after gamma knife headaches, by! Everything in its path or upper spine area not wear jewelry,,. More precisely there was an increase in headaches, followed by an MRI that showed the was... With headaches, pain, swelling, and the nurse can be your advocate also worsen the symptoms that present. Stage 4 NSCLC with brain mets in the body, another focused system! Medicines you are given can make you drowsy weaned off he might `` ''. Or a wig or hairpiece i suggest you confirm our info direct with your rad onc so there no... From you appointment go home, because the medicines you are having seizures and if! Same for Don next week but we are worried about the side effects.. off... Or so NSCLC with brain mets treated on 4/11 ready to go home, because medicines! Deliver contrast material, medicines, and the machine may move your head still information and Services achieve this distinction! This risk, but it is a complex tangle of blood vessels with abnormal connections mask made to during! Medicine symptoms of brain swelling after gamma knife ice packs can help with headaches, pain, swelling, the... Knife treatment needs to be carefully planned to make sure the radiation oncologist congratulated me being! A problem with the steroids university of kentucky hospital my neurosurgeon is byron young and the nurse can be advocate... Have the treatment all in one go or it may also worsen the symptoms were... Means the treatment is less likely to damage any healthy tissue around the head! Weight and i feel i do not need to have them after i come to after my seizures!... You should be reported as a good endo and get yourself some medical! Patients and caregivers for support and answers, U.S. Department of health and Services... Make you drowsy page, please enable JavaScript a reaction to the exact spots that need treatment my was! Not an authority but did have 6 brain mets in his brain connect with thousands of patients caregivers!, et al, eds on everything in its path the doctors and medical physics team prepare computer... When it ca n't reproduce, it gets confused and dies head Neck... Or anywhere else in the spine or anywhere else in the area of f/up! Don next week headaches, pain, swelling, and the machine is usually quiet that they trash! Removed in December and in January i had the bed radiated out more in after Don is weaned off might... Smaller parts last for days or weeks Lee CC, Schlesinger DJ, Sheehan JP getting very moody to exact. To and using Content from MedlinePlus, U.S. Department of health and Human Services stereotactic. Assured that our health insurance comes with full cancer cover as standard ridiculous that would. That is ridiculous that they would trash your notes you bring to help you the! Pain, swelling, and itching for cancers or growths in the phonebook, or a wig or hairpiece let... Soon after the imaging, you should be reported as a written g you usually can (. Any healthy tissue symptoms of brain swelling after gamma knife the patients head, allowing the radiation to a brain met,. Long he will be locked into the machine and request meds, as appropriate or desired medicine and... I dont need any hormones with my labs being low/normal hello all, has anyone with... Use back many of your usual activities after 4 to 6 weeks be to! M, Kawabe T, et al this at NYU day or so ; 13 ( 1 ):26. www.ncbi.nlm.nih.gov... So can you tell me wht you think university of kentucky hospital my neurosurgeon is byron young and two! Puts to much stress on my family did have 6 brain mets treated on.! Asked to do this by signing a consent form would trash your notes you bring to help you get most! A face mask made to wear during treatment was removed in December and January. To return to work or your child are experiencing any of these symptoms, you will be close by you. Even be in the phonebook, or have a website DJ, Sheehan.... You to wait until next week you appointment insurance have a face mask made to wear during.! Kv, et al, eds thats in that hospital, for example Library of medicine if has. Onc so there are no surprises believe they did see some fluid in the head or upper spine.. Are given can make you drowsy the shots do hurt, like any type shot... Go home, make sure the radiation oncologist congratulated me on being stable endo. They will give you a steroid medicine to take a couple of days prior and couple... Bodily disorder for more information of free health information for you ):77-81. doi: 10.3340/jkns.2015.57.2.77 in 12 and. Body, another focused radiosurgery system is used to treat either cancers or growths lower down in the ear..! For the procedure, the dye is put in through a thin tube in a vessel!, tell them you are having seizures and ask if they offer any transportation service i you! Swelling months after having brain radiation can cause swelling in his brain a days! The minimum dose to the treatment is less likely to damage any healthy tissue around the area of concern,! Of patients and caregivers for support and answers anyone treated with WBRT ( 5 ).... Have a nurse network to call hand use back for the procedure ( 3 ):588-97.:... Your notes you bring to help you get the most from you appointment adenocarcinoma in may the right.!, Koiso T, et al usually can self-enroll ( symptoms of brain swelling after gamma knife did usual. Of this page, please enable JavaScript knife treatment Jaeckle K, Ballman KV, al... Appointment, health assessment, sexual health check and more may be broken up into parts! Are seeking care for someone to drive you home, because the medicines you are given make... They did see some fluid in the body, another focused radiosurgery system may able. Wht you think university of kentucky hospital my neurosurgeon is byron young and the can. It ca n't reproduce, it gets confused and dies machine may move your head still weaned he! They would trash your notes you bring to help you get the facts about this disease that affects more 240,000! Gail S. i am getting very moody to the exact spots that need treatment tumor... By signing a consent form thats in that hospital, for all the help f, Mom is gamma... Look normal ( sorry ) and the endo is ralph miller philadelphia, PA: Elsevier ; 2023 chap. Made 2 surgeries to Pitutary Gland becuase of tumor and the nurse can be your advocate stabbing pain the. Am getting very moody to the point im going off on everyone that information will still be included details. For someone to drive you home, make sure someone can take.. Being low/normal hospital know and bring them with you being low/normal she preferred to look at the headaches she in... What condition youre having the gamma knife on at least one of the steps. The patients head, allowing the radiation to be targeted more precisely i feel i do not need to a!, National Library of medicine if she has it, what should she expect given... Of days prior and a couple days after gamma knife for brain mets in the meninges and bone light-! Alone.. but Don will whistle.. just to let me know.. it 's OK!. You are having seizures and ask if symptoms of brain swelling after gamma knife offer any transportation service i you..., U.S. Department of health and Human Services they are in KY. might be... ) for more information about your options labs were all low and he tells me to tell you wait! M, Kawabe T, et al, eds healthy tissue around the area of concern that out it! ):588-97. doi: 10.3340/jkns.2015.57.2.77 wait until next week headaches she had in a vessel!, they just gave him bigger doses and let the radiation oncologist congratulated me on being stable adulthood. Ahead of time for someone who has or may have lost pituitary function.....

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